HB1316

We need to keep privacy and medical information in the hands of the patient. Please keep the privacy of autistic patients and their families as a priority

This is not the governments right to know. This is private medical information that is protected by hippa.

Why is the government collecting information on anyone?

I support this bill that further maintains the civil rights of all citizens in NH by restricting the ability of the state to gather data on individuals with autism. Individuals with autism should be afforded the same rights and dignities as all humans. Collecting data without informed consent on any individuals is an inalienable right. We should not be singling out any in our society on which to collect date. As a career long special education public school employee, I strongly believe that we are all created equal no matter your ability and need to be treated equally.

We have family members who are autistic, and there has been concerning movement from the federal government implying that they may plan to treat autistic people differently than others. So I fully support anything that restricts the federal government or large corporations acting against autistic people.

We need to respect people’s rights to privacy of medical information.

What happened to separation of church and state!

I have a number of constituents who asked me about writing legislation like this. I would have loved to co-sponsor, but I didn't see it in time. This legislation would give a small amount of relief to parents who are legitimately worried about what RFK intends to do with their child's medical information. I have had to speak to parents who were in tears with worry. Please. I urge you to OTP this legislation.

Autistic people should be allowed to live in peace.

listing individuals is dehumanizing

I am testifying in strong support of HB1316 to keep autistic people's information private and under their own control. The current political climate is trending dangerously toward eugenics and the collection of data is where this begins.

Every individual has the right to privacy. And it is critical that those who may be most vulnerable or protected at every level. Because if we don’t have privacy, if we don’t have safety, if we don’t have our rights intact what do we have and are we truly free?

It is essential that all medical diagnoses, and related evaluations and treatment are held to the highest privacy standards. Private medical information should only be available to those that are directly involved in a person's care, and to a very limited extent as needed for processing 3rd party payment.

This is a giant hippa violation. The federal government has no good reason to need this information.

Autistic granite staters deserve the right to privacy, just the same as allistic(non-autistic) granite staters.

I had testified earlier but my response was mistakenly registered as opposition rather than support. I oppose the creation of an autism registry, and SUPPORT a bill that protects autistic individuals' inalienable rights to privacy.

As a parent of a child with a disability, I strongly urge you to support HB 1316, which is crucial for enhancing privacy protections for individuals on the autism spectrum and their families. The data related to autism is deeply personal and reflects the identity of these individuals rather than something that should be tracked and categorized. Without robust safeguards in place, there's a risk of this information being misused, which can lead to stigma, discrimination, and significant harm. HB 1316 establishes necessary boundaries on how this sensitive information is collected and shared, ensuring the dignity, autonomy, and civil rights of those affected are honored. I ask you to stand with the disability community by voting in favor of this important legislation. Thank you for considering this matter thoughtfully.

Privacy is a human right. Autistic people are entitled to privacy. This is a disability rights issue. Please support this bill.

this bill needs to pass. medical professionals should only have access to medical information if the patient or their guardian has agreed for them to see it. medical information needs to be kept private. medical information can discriminate, ,hurt or unfairly target people if shared to the wrong people. to help keep people of our citizens safe, this bill needs to pass

I have lost trust in how the government uses our personal and private data. This is a special risk for anybody who falls outside the norm. I support any bill that stops big brother from invading our privacy.

Please support the right to data privacy.

I am very much in support of this added protection for autistic individuals in New Hampshire. Normally, I'd feel individuals on the spectrum are adequately protected under the many medical privacy laws we already have and follow, but statements over the last year by federal officials expressing an interest in removing autistic people from general society and placing them in "wellness farms," leads me to believe we need more. Secretary Kennedy's misleading, inaccurate, deeply unscientific and harmful stance on autism presents a very real threat of harm to autistic individuals of any age and ability. Additionally, his repeated references to moving these citizens to federal camps, where they will be held for "treatment" and "rehabilitation" evoke the image of the past century's horror show of American residential schools and camps for "deficient" youth, like Samarcand Manor and Dobbs Farm. Find me a time in history where removing a minority group of people from society based on inherent traits, and holding said group in a remote, guarded camp has been a net good. Even when those systems were intended to actually help its residents, things eventually devolved into abuse, neglect, and a host of horrific stories from their survivors. This country has already done this with the Japanese Internment Camps of WWII, a shameful, racist period of our history, so we know it can and HAS happened here before. We should not soothe ourselves that it cannot happen again, and with such rhetoric coming not from a fringe extremist, but from the Secretary of Health and Human Services, the time to act to prevent this is now. This bill will help protect New Hampshire's autistic residents, and work to prevent some of the worst of our history from repeating itself. New Hampshire is supposed to honor Live Free or Die, and a bill protecting our people from ignorant dangerous rhetoric and federal interference seems like a natural fit.

I support this bill.

People with autism have a fundamental right to privacy. I fully support this bill.